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September 20 Shitty update!Hi everyone, thanks for thinking about me. I know I have been kinda offish with all of my friends,I don't mean to be, it's just everytime I turn around it is somthing else, and I end up just sticking to myself. I'm sorry. It is just my way of kinda dealing with crap. I always think about you guys though....So here is my shitty update....After all these Dr. appts. I go in on thursday to be told the masses on my lower spine are not tumors..yet......(are ya thinkin' bout that one??) ya me too....uhmmm, ok not YET? Nah...just fibromas..that have built up on my..(are ya ready) SCIATIC nerve.... so all the back pain, burning in my legs and the random falling on my ass from losing feeling in my legs is totally normal!!??? Ok moving on so as for the not YET junk...the only treatment is pain meds and monitoring....monitoring them till they become tumors...for which the couldn't operate on anyways because of all the nerves they would come in contact with and send into a frenzy and then i would end up with 10 tumors in it's place..yeehaw! For those who don't know NF simple term of it would be.......TRUE TO THE SLOGAN.... getting on my nerves....The defect in my cromosone 17 is that my body produces to much protien and OVER REPAIRS nerves and nerve endings...so pretty much what happens is where ever I have a nerve in my body(which is everywhere) If a nerve somwhere gets kinda stressed, it will repair itself...but it won't stop....it will keep feeding into it which causes it to end up looking like a split hair but those split ends over repair and they grow spilt ends and those split ends grow split ends...and so on...and so on. Till ya end up with a tumor..somwhere on your body....now trying to remove that tumor you would be agitating nerves around it which would cause THOSE nerves to over repair..blah blah blah...... now think of everywhere in your body you have nerves....brain, spine ,finger, toes ,eyes ,ears, EVERYWHERE...... SOoooo.........so the tumors are left alone because they really can't be operated on until they actually get so big and they are causing problems to neighboring organs, or have attached themselves to your heart,or lungs..or wherever they want.....So that is NF........ and to continue with my update..........pain meds and my ass cheek randomly on fire for now.. I'm good.....Got to go to Cardioligist in Oct. and get to go see an Internist!! (kinda creepy name Internist, makes ya think a pap aint all that bad..lol) Gonna check my organs...... Seriously thinking bout donating them...if they are in good condition I think I will donate them . Been checking out Live donation..seems pretty amazing that people are doing this....and being in me they will only get sick,so if they can be used.. go for it I think......OK gonna go......let me know what ya think. been rambling abit, I'm tired will definitly check back .......talk to you all soon. Tammy
P.S. Min, I miss ya dearly. Muah. Comments (8)
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