FIGHT 4 NF's profile×÷·.·´¯`·)»TAMMYS FIGHT«...PhotosBlogListsMore Tools Help

Blog


    September 08

    A picture tells us alot!!!!!

    hello everyone... sorry we havent updated till now..but  things have been busy and well we didnt have much to tell you all till now.
     
    Tammy and I did not attened the NF BBQ in july..but wanted to..
    We have tried to contact the NF site and the staff there as Tammys work wanted to have a fundraiser for NF at work..but had not got No call back..were at loss for words , this fundraiser would have brought a few dollars to the reserch for NF.
     
    Anyways......Tammy has had some testing done as she has what i call the inside NF..some people have the outside where the tumors are visiable ,,,Tammys you can not see.
    So recently Tammy had a CAT SCAN done..a full body one..this was done last week..well two days after that scan was done they were calling Tammy back in for more pictures to be done they had found a MASS in her lower back.
    They needed her to come back for monday this week..(yes it was a holiday) but they really needed to have more pictures done they found something.!!!
     
    So Now Tammy has to sit and wait till thursday next week for the results..... I dont have NF and it is driving me crazy having to wait for  the news..can you imagin what Tammy is feeling and going through...
     
    This mass is on the nerves in her spine the lower back part..
    So the pain and numbness can now be explained some what.
    With not knowing a hole hell of alot about NF..what does that mean for Tammy?
    Surgery..if not does that mean at some point in her life  the tumors will affect her ability to walk?
     
    Well anyways we will update you all when we get the results next week..in the mean time PRAY alot for Tammy .
     
    And if anyone from the NF site reads this could you please call us...
     

    Comments (6)

    Please wait...
    Sorry, the comment you entered is too long. Please shorten it.
    You didn't enter anything. Please try again.
    Sorry, we can't add your comment right now. Please try again later.
    To add a comment, you need permission from your parent. Ask for permission
    Your parent has turned off comments.
    Sorry, we can't delete your comment right now. Please try again later.
    You've exceeded the maximum number of comments that can be left in one day. Please try again in 24 hours.
    Your account has had the ability to leave comments disabled because our systems indicate that you may be spamming other users. If you believe that your account has been disabled in error please contact Windows Live support.
    Complete the security check below to finish leaving your comment.
    The characters you type in the security check must match the characters in the picture or audio.

    To add a comment, sign in with your Windows Live ID (if you use Hotmail, Messenger, or Xbox LIVE, you have a Windows Live ID). Sign in


    Don't have a Windows Live ID? Sign up

    Keishawrote:
    Hi girl...
     
    I have come across your space through Carolyn's.... I am awfully sorry to read about what has been happening to you.  To be honest, I do not know much about this NF, and reading about you has made me realise that it is something I should get to know about more and also help others be more aware of it...
     
    So often in life, we look at our own lives and can complain so easily about how crap it is and all the little things that aren't falling in smoothly.... and then you bump into a space like yours and your own life falls into perspective again...and you realise how much you have to be thankful for... so what if someone drove into the back of your car (or even if your boyfriend has cheated on you...?!)  Those are all things that mean nothing in the bigger scheme of things, that you can fix....
     
    I am going to find out more about it...thank you for being the vehicle that made me aware of it.... I would like to add you as a friend on my space, so others' can also be made aware if you don't mind? 
     
    I hope that you will have a beautiful week and that something magical will happen to you every day....
     
    Thinking of you....with warmest wishes.....
     
    KeKe ♪xx♪
    Feb. 11
    Jan Waleswrote:
    so sorry i havent been here sooner. will pray for you both. hugs x x x x
    Dec. 6
    Hi guys, no sense saying how are things going pretty shitty eh? I know what its like to wait thats the worst part of the whole deal, the waiting game and to know your life sits on someones desk waiting for your appointment drives me bananas I have to tell you, I am sorry to hear about the bad news, I am sure Tammy will get herself through this one too as you know I always say we just can't go around these things we have go straight ahead so might as well make the best of it and just "deal" that is after the shock of course I am not heartless I know there is an initial shock hope for the best while you wait but prepare for the worst god knows you have time while your waiting, I just went through that waiting game as a matter of fact no answers and still under investigation so at least you know what's wrong and you can fix it and go on with things, its good to find bright sides, my friend says you have to have alot of rain before you see a rainbow, how true, I will  talk to you soon, wishing you all the best, bye for now, cherl, ^j^ ^j^ ^j^ ^j^
    Sept. 23
    Shannonwrote:
    I am so torn.  Saddened to hear that they found something and relieved that they found it at the same time.  Tammy, you are going to do great!!  You have a certain resilliency and you are scrappy...Nothing keeps you down for too long.  You are a survivor and a fighter...Just don't give up!  Keep us updated about the results and anything else.  I wish I was closer to you to be there to support you or help you out any way I could.  You have always given so much of yourself and now would be the time for others to give back to you.  I love you, Kid!!
    Sept. 16
    I can't believe the NF people never contacted you.  They should welcome the opportunity for fundraising and awareness.  Until I came across this space....i had never heard of NF before.
    I will pray for Tammy and pray that the NF people get back to you.
    Please keep us up-to-date with what is happening.
    God Bless You
    Karin
    Sept. 12
    I am so sorry  that  this has happened to you. You are a great person and don't deserve any of this. You have been through so much crap in your life, why this too. I will pray for you and it's just too bad I couldn't be there for you to help you through this.It's like my Crohn's, you trust certain people with you disease and thats it. I hope everything is OK with the results. Keep us up to date please. I will visit this site often to find out the next step in your fight.
    Take care!
    Love MindyXOXOXOXO
    Sept. 9

    Trackbacks

    The trackback URL for this entry is:
    http://fight4nf.spaces.live.com/blog/cns!FEDE1671052BB78B!277.trak
    Weblogs that reference this entry
    • None