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September 08 A picture tells us alot!!!!!hello everyone... sorry we havent updated till now..but things have been busy and well we didnt have much to tell you all till now.
Tammy and I did not attened the NF BBQ in july..but wanted to..
We have tried to contact the NF site and the staff there as Tammys work wanted to have a fundraiser for NF at work..but had not got No call back..were at loss for words , this fundraiser would have brought a few dollars to the reserch for NF.
Anyways......Tammy has had some testing done as she has what i call the inside NF..some people have the outside where the tumors are visiable ,,,Tammys you can not see.
So recently Tammy had a CAT SCAN done..a full body one..this was done last week..well two days after that scan was done they were calling Tammy back in for more pictures to be done they had found a MASS in her lower back.
They needed her to come back for monday this week..(yes it was a holiday) but they really needed to have more pictures done they found something.!!!
So Now Tammy has to sit and wait till thursday next week for the results..... I dont have NF and it is driving me crazy having to wait for the news..can you imagin what Tammy is feeling and going through...
This mass is on the nerves in her spine the lower back part..
So the pain and numbness can now be explained some what.
With not knowing a hole hell of alot about NF..what does that mean for Tammy?
Surgery..if not does that mean at some point in her life the tumors will affect her ability to walk?
Well anyways we will update you all when we get the results next week..in the mean time PRAY alot for Tammy .
And if anyone from the NF site reads this could you please call us...
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